Until she was about a year old, Minna seemed like your average, healthy baby girl. At 21 months of age, after numerous tests and a full genome sequencing of her DNA, we were heartbroken to learn that she has Rett Syndrome. We are now on a mission to cure Rett Syndrome so Minna and those like her can lead normal lives.
A cure for Rett is within reach
Mission Minna’s sole purpose is to find a cure for Rett Syndrome. We will do this through fundraising and raising Rett Awareness. Mission Minna is passionate people, working hard to raise money for the research that will one day find a cure for Rett Syndrome. The cure is within reach. Once this cure for Rett Syndrome is a reality, the diseases it impacts are endless.
Rett Syndrome: the facts
Every 90 minutes a baby girl is born with Rett Syndrome
The verage life expectancy of someone with Rett: mid 40’s
children with Rett lose their ability to walk and require mobility assistance
What is Rett Syndrome?
Rett syndrome is a rare genetic neurological disorder that occurs almost exclusively in girls and leads to severe impairments, affecting nearly every aspect of the child’s life: their ability to speak, walk, eat, and even breathe easily.
Learn more about Rett
Life expectancies are not well studied, although survival at least until the mid-20s is likely. The average life expectancy for girls may be mid-40s. Death is often related to seizure, aspiration pneumonia, malnutrition, and accidents.